| 1 |
Review Partnering for care: the evidence and the expert. 2009
Specht JK, Taylor R, Bossen AL. · The John A. Hartford Center of Geriatric Nursing Excellence, The University of Iowa College of Nursing, Iowa City 52242-1121, USA. · J Gerontol Nurs. · Pubmed #19326825 No free full text.
Abstract: Evidence supports the maintenance of self-awareness in individuals with Alzheimer's disease (AD) and the individuals' ability to identify their own needs. The need for individualized, person-centered programming may be met only if the perceptions of the individuals with AD are taken into account and valued. There is strong support for individuals with AD to be involved in developing their plan of care. Plans should include supportive and educational programs, individualized to the person's self-identified needs. Plans must also take into account preserved self-awareness and address preservation of self-esteem, maintenance of abilities, management of behavioral symptoms including depression, and health promotion. Second author Richard Taylor, who has dementia, noted the absence of discussion on this joint planning in most of the AD literature. As he says, it omits the most important person, the person with dementia.
|
| 2 |
Review Needs of people with early-stage Alzheimer's disease: reviewing the evidence. 2009
Bossen AL, Specht JK, McKenzie SE. · The University of Iowa College of Nursing, Iowa City 52242-1121, USA. · J Gerontol Nurs. · Pubmed #19326824 No free full text.
Abstract: The focus of this literature search was on the needs of older adults with Alzheimer's disease (AD). Very little research has been published directly related to the concept of needs, so concepts were identified by implicitly pulling them from the foci of articles. Identified articles were written outside the framework of the person with AD-from the perspective of the providers and caregivers. To get the person's perspective, the search was expanded to find"self-identified" needs of the person with AD and by widening the medical subject heading terms. The collection of work found indicated retained awareness of the person with AD well into the disease process and that this awareness is not recognized by professionals or caregivers. The result is that older adults with AD are not consulted in determining their needs or having a voice in their plan of care. Also identified were the needs for early diagnosis, to be heard, for information and knowledge, for safety, health promotion, and emotional and cognitive support.
|